Genetic Data Access Summary

Applying for access to HRS Genetic Data Products

Epigenetic Clocks and Polygenic Score Data (PGS) are available as public data with no additional application steps.

APOE and Serotonin Transporter Alleles and 2008 Telomere Data are available as an HRS Sensitive Health Data. Submit the Sensitive Health Data Order Form to apply for access.

Genotype Data Versions 1 and 2 are available directly from dbGaP and require dbGaP Authorized Access. See the YouTube video dbGaP: Apply for Controlled Access Data for a step-by-step demonstration of how the application process works. HRS-dbGaP Cross-Reference Files v1 and v2 are required to link HHID/PN (the unique HRS identifier) to the identifier assigned to HRS genetic data stored in the dbGaP system.

HRS-dbGaP Cross-Reference Files v1 and v2 are required to link HHID/PN (the unique HRS identifier) to the identifier assigned to HRS genetic data stored in the dbGaP system. Submit the Genetic Data Cross-Reference Request Form form to apply for access to the cross-reference files after you receive your dbGaP Authorized Access. A completed and signed Genetic Data Access Use Agreement is required.

Genotype Data Version 3 (2006-2012) is available directly from NIAGADS with an approved NIAGADS Data Access Request (DAR). More information on how to apply for access can be found on the NIAGADS website.

HRS-NIAGADS Cross-Reference File is required to link HHID/PN (the unique HRS identifier) to the identifier assigned to HRS genetic data stored and distributed by NIAGADS. Submit the Genetic Data Cross-Reference Request Form form to apply for access to the cross-reference file after you receive your NIAGADS Authorized Access. A completed and signed Genetic Data Access Use Agreement is required.

Candidate Gene and SNP Files, Exome Data are available through a virtual desktop infrastructure (VDI) system that allows users to connect their own desktop to a secure data enclave. If you have an HRS Restricted Data Agreement (RDA), submit the Modify an Agreement form to request access to these products. If you need to apply for an RDA, begin at the Restricted Data: Access with VDI page.